Feature Stories - Tell Your Story
Share your story
Sharing your story is vital because it breaks the silence, fostering empathy and connection while validating the experiences of others. By offering hope, empowerment, and challenging stigma, personal narratives inspire change and remind individuals that they are not alone in their struggles. It’s an act of courage that not only honors your journey but also reaches out a hand to those walking a similar path, showing them they matter and their stories have power.
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Sadie Mae
At four months old, a baby should be discovering the world around her—smiling, learning new sounds, reaching for toys and being held safely in her parents’ arms. We never imagined that at such a young age we would begin a journey filled with seizures, neurologists, medications, EEGs, MRIs, lumber puncture, hospital visits and so many unanswered questions.
Jaime Collicutt
At present, I just graduated from Nova Scotia Community College with a Diploma in Disability Supports and Services Program. I have been seizure-free for 1 year and 9 months. Epilepsy does not have to be the end of dreams; at times, it’s just the beginning!
Andrew Van Geest
My name is Andrew, and I live in Moncton, NB. I have lived with epilepsy for most of my life. I have had several surgeries on my brain. I was just 3 when I had the first and 5 when I had the second, both at Toronto’s Sick Kids Hospital. I had a frontal lobe resection in 2022 in Halifax which considerably reduced the frequency of my seizures.
Shyla Croft
Through my daughter Hayley’s journey, I’ve acquired the strength it takes to manage not only seizures and spasms but the many challenges that come alongside them. The Epilepsy Association has been an incredible support system for our family over the last 8 years.
Hayley Brown
Born October 20th, 2016, Hayley was approximately 36 hours old when we noticed eye deviation and twitching in her hand. It was then that the nurses took Hayley to the NICU, where she spent 9 days undergoing tests to confirm her epilepsy.
Over the last 5 years, she had multiple blood tests, EEGs, MRI’s and medication changes.
Gail Boyle
“Now I stand up for myself and what I believe is right; now I don’t feel as much shame and embarrassment; now I’m not afraid to speak up; now I know I’m not stupid; I can help other people who have seizures and other people who can’t read”. “I’ve learned I have the right to freedom; I have the right to be equal, I have the right to be in society and no one has the right to take my power away”. “I have the right to make some mistakes in my life too – no one is perfect. I have the right to be happy for myself “.
Heather Vance
I love helping others and doing education on making people aware of epilepsy. I am very passionate about epilepsy education and awareness for people with epilepsy.
My hobbies are volunteering to help people, wreath making, decorating, crafts, painting and some sports like walking and swimming and much more, also being with friends
Tyler Dyke
I’m 35 years old and have been living with Epilepsy since I was 3. When I was younger my epilepsy was a constant challenge to learning in school and living a normal child’s life. I was often forced to sit on the sidelines and was not able to participate in many activities with my friends and family.
Annick Leger
My name is Annick Leger. I am from Dieppe, NB. At the age of 13, I was the youngest player to be selected to the Soccer NB Canada Games team and I was the Atlantic shot-put champion. People who know me, say I’m personable and goal-oriented. I always look at the positive things in life and embrace challenges with a smile.